Press

Media Mentions:

  1. William Taylor, Prosper Parents help launch Project Alive campaign, Frisco Enterprise (6/20/2015)
  2. Lisa M. Jarvis, Special Report on Rare Disease: Regulations are Cause for Concern (Chemical & Engineering News 2013) (subscription required)
  3. John LaMattina, Devalued and Distrusted: Can the Pharmaceutical Industry Restore its Broken Image? (John Wiley & Sons 2013) (pp. 103, 104)
  4. PF Anderson, #IfIHadGlass Becomes #GlassExplorers, Emerging Technologies Librarian (4/2/2013)
  5. Ethan O. Perlstein, Cri de Cure Perlstein Lab (3/7/2013)
  6. Hannah Blake, Editor’s Voice: February – rare disease awareness and top ten e-patients, PharmaPhorum.com (2/28/2013)
  7. Rare disease perspectives from patients and caregivers, PharmaPhorum.com (2/27/2013)
  8. Susannah Fox, What if health care…? (2/8/2013)
  9. John R. LaMattina, Should the Cystic Fibrosis Foundation Invest $58 Million in Pfizer Research?, Forbes.com (11/28/2012)
  10. Wendy White, How Pharma Can Talk With Patients, SirenSong (11/15/2012)
  11. Joel Cessna, So You Still Don’t Use Social Media?, Evalia Personal Health Profilers (10/18/2012)
  12. Sarah Klein, Hunter Syndrome: Positive Exposure Founder, Photographer Rick Guidotti, Shows Beauty In Difference With ‘Hunter In Focus’ (PHOTOS), Huffington Post (10/18/2012) (photos of Case)
  13. Caroline Hornby, Video: Melissa Hogan of Saving Case presents a Hunter Syndrome patient testimony at World Orphan Drug Congress USA 2012, Total BioPharma (10/17/2012)
  14. Sona Mehring, Social Media and Your Health: How Much Do You Share?, WebMD Expert Blog: A Different Normal (10/15/2012)
  15. Jamie Page, Spring Hill Mom Shares Journey Via Social Media, The Tennessean (10/3/2012)
  16. Health Care Social Media Summit – Melissa Hogan Story, Mayo Clinic Social Media Health Network (10/26/2012)
  17. Sam Hosenkamp, Patient stories: Amplified at Mayo Clinic, Ragan’s Health Care Communication News (10/19/2012)
  18. Eileen O’Brien, Takeaways from the World Orphan Drug Congress, SirenSong (4/20/2012)
  19. Eileen O’Brien, Saving Case at the World Orphan Drug Congress, SirenSong (4/16/2012)
  20. Global Genes Project, Mucopolysaccharidosis II: Saving Case (3/30/2012)
  21. Pamela Todd, What Do Patients Want From Pharma?, SirenSong (3/18/2012)
  22. Melissa & Case Hogan Share with Patient Commando, PatientCommando.com (1/5/2012)
  23. Greg Menza, Rare Case: Family clings to hope despite boy’s deadly disease, The Daily Herald & The Advertiser News (March 2010)

Videos:

  1. Melissa Hogan of Saving Case presents a patient testimony at World Orphan Drug Congress, biopharmachannel (YouTube 9/14/2012)
  2. Melissa Hogan on Rare Disease, Patient Advocacy, and Social Media, Global Genes | RARE Project (Vimeo 9/20/2013)
  3. There is a perception that manufacturers can’t talk with patients, Centric Health Resources
  4. Melissa Hogan from SavingCase, Siren Interactive (YouTube 4/10/2012)
  5. One Journey to a Rare Disease Diagnosis, Siren Interactive (YouTube 4/17/2012)
  6. Social Media and Rare Disease Caregivers, Siren Interactive (YouTube 4/17/2012)
  7. Social Media Gives Patients a Voice. Are You Listening?, Ragan Training (fee required)

Original Work:

    1. #WhenIGrowUp – with Jared Leto, Rare Disease Report (7/10/2015)
    2. Traditional Fundraising is Dead. Social Media Wins the Day, Rare Disease Report (6/25/2015)
    3. 10 Social Media Golden Rules for (Rare Disease) Conferences, Rare Disease Report (6/15/2015)
    4. Why I’m Live Blogging a Rare Disease Clinical Trial, Rare Disease Report (2/28/2015)
    5. Six Ways Social Media Affects Your Clinical Trial (whether you like it or not), Rare Disease Report (10/2/2014)
    6. Go Ahead and Stare, Positive Exposure (Spring 2013)
    7. Virtual zeal: rare disease caregivers carry a powerful voice in social media, PharmaPhorum.com (3/8/2013)
    8. How much is that cure in the window? Pharma testing the waters of the cure, PharmaPhorum.com (2/22/2013)
    9. Caregiver shares touching story about her son’s battle for his life, Ragan’s Health Care Communication News (10/4/2012) (originally at Melissa H. – Scholarship Contest Essay, Mayo Clinic Center for Social Media (7/16/2012))
    10. What We Want From (Big) Pharma, SirenSong  (4/26/2012)
    11. All articles on SavingCase.com

 

In this section


Leadership

History

Bylaws

Financial