When a parent first hears the words “Hunter Syndrome,” they often feel isolated from the world they once knew. While this new reality may seem scary at first, there are many parents and individuals committed to sharing their journey together – through the scary times and into the light.

Saving Case & Friends has always been committed to the principle of not reinventing the wheel. Families collaborate and share strategies for coping, advocacy, fundraising, and medical issues. We connect with the best researchers in the field and regulatory agencies to better the future for our children and undiagnosed ones to come.