Posts tagged with world-rare-disease-day

5 Things to Tell Your Kids About World Rare Disease Day

Posted Monday February 29, 2016 by Melissa

In my dreams, kids go to their parents on the last day...

In my dreams, kids go to their parents on the last day of February (today, February 29th) and say, “Mom, what’s a rare disease?” They’ve heard the phrase on the...

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Family

Ask Yourself 8 Questions If You Think World Rare Disease Day Doesn’t Apply to You

Posted Friday February 19, 2016 by Melissa

Don't have a rare disease? Then you might think that World Rare...

Don't have a rare disease? Then you might think that World Rare Disease Day doesn't really apply to you. But first ask yourself these 8 questions.......

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Ask Yourself 8 Questions If You Think World Rare Disease Day Doesn’t Apply to You

Hope … and Chaos: Rare Disease Day

Posted Wednesday February 29, 2012 by Melissa

Today is a unique day. It is known to most as being...

Today is a unique day. It is known to most as being unique for being Leap Day. But for our family and those of many we know, it is unique...

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Hope