Posts tagged with unc-childrens-hospital

Intrathecal Trial Update – Of Ports and Prayers

Posted Wednesday February 01, 2012 by Melissa

We are in North Carolina on the tail end of our visit...

We are in North Carolina on the tail end of our visit for IT dose #15. The dose was successful, meaning they were able to access the port, draw off...

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Intrathecal tattoo

Anatomy of an Intrathecal Clinical Trial Visit

Posted Friday October 28, 2011 by Melissa

Now that we only have 4-day visits instead of 9-day visits, things...

Now that we only have 4-day visits instead of 9-day visits, things seem to go much more quickly. There’s definitely time for some fun stuff (less now that the trips...

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Milestones

Posted Wednesday July 20, 2011 by Melissa

Milestones are things we hear about before our babies are ever born....

Milestones are things we hear about before our babies are ever born. There are pregnancy milestones that then become first year milestones, and second, and on and on. For many...

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IT dose 8

MPS II Intrathecal Trial on Hold

Posted Wednesday June 15, 2011 by Melissa

UPDATE: As of 7/1/11, the suspension on enrollment in the intrathecal trial...

UPDATE: As of 7/1/11, the suspension on enrollment in the intrathecal trial was lifted by the UNC Institutional Review Board. ———————————————– A clinical trial is never a place to get...

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Taking Time

Games and Puzzles

Posted Wednesday April 27, 2011 by Melissa

Not too many parents are excited when their child is enamored by...

Not too many parents are excited when their child is enamored by a video game, but I was jumping for joy today. I wasn’t sure what to expect when Case...

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Case playing video game

Top 10 Tuesday: Top 10 Signs Your Son is in a Clinical Trial

Posted Tuesday April 19, 2011 by Melissa

Welcome to our first Top Ten Tuesday! On a side note, if...

Welcome to our first Top Ten Tuesday! On a side note, if you have any submissions or ideas to use as future Top 10 Lists, feel free to submit them...

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Top 10

Case’s Elaprase Treatment

Posted Saturday April 02, 2011 by Melissa

Every Thursday since July 2009, Case has traveled to Vanderbilt Children’s Hospital...

Every Thursday since July 2009, Case has traveled to Vanderbilt Children’s Hospital to receive an infusion of a drug called Elaprase. So, by now, Case has had approximately 80 infusions...

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Hospital bed sleeping

Recreation Therapy, Case style

Posted Thursday March 31, 2011 by Melissa

Being in a hospital for many days each month is almost enough...

Being in a hospital for many days each month is almost enough to drive a child (or his mother) crazy, right? Especially when that child has issues with hyperactivity, attention...

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Recreation Therapy