Posts tagged with pictures-2

Anatomy of an Intrathecal Clinical Trial Visit

Posted Friday October 28, 2011 by Melissa

Now that we only have 4-day visits instead of 9-day visits, things...

Now that we only have 4-day visits instead of 9-day visits, things seem to go much more quickly. There’s definitely time for some fun stuff (less now that the trips...

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One Port, Two Port, Red Port, Blue Port

Posted Tuesday March 29, 2011 by Melissa

Today, Case received his 4th dose of intrathecal idursulfase or Miracase as...

Today, Case received his 4th dose of intrathecal idursulfase or Miracase as we’ve dubbed it. Now, this sounds like a smooth ordeal, but the potential for hangups exists all along...

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Mommy and Case

Our Hunter Boys

Posted Sunday March 06, 2011 by Melissa

Who could be cuter than a bunch of our Hunter boys? I...

Who could be cuter than a bunch of our Hunter boys? I recently spoke at a conference to tell Case’s story of diagnosis and treatment and to give a face...

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