Posts tagged with diagnosis

Ask Yourself 8 Questions If You Think World Rare Disease Day Doesn’t Apply to You

Posted Friday February 19, 2016 by Melissa

Don't have a rare disease? Then you might think that World Rare...

Don't have a rare disease? Then you might think that World Rare Disease Day doesn't really apply to you. But first ask yourself these 8 questions.......

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Ask Yourself 8 Questions If You Think World Rare Disease Day Doesn’t Apply to You

A Letter to the “Before” Me

Posted Monday November 24, 2014 by Melissa

Dear “Before” Me, You don’t realize that you’re living in the before....

Dear “Before” Me, You don’t realize that you’re living in the before. That’s okay. In fact, that’s wonderful. Life is beautiful right now. Busy, but beautiful. Your children are always...

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A Diagnosis Story

Posted Monday July 14, 2014 by Melissa

Every child or adult with a rare disease has a diagnosis story....

Every child or adult with a rare disease has a diagnosis story. Some are long and traumatizing, some are short and miraculous, and some are just so very sad, replete...

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SmartMomDiagnosis

Path to Diagnosis: Through an ENT?

Posted Saturday November 23, 2013 by Melissa

We all have different stories to tell about our child’s path to...

We all have different stories to tell about our child’s path to a diagnosis, whether it be for MPS or another condition. For rare diseases, often that path is long...

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