Melissa Hogan, J.D.

Melissa Hogan, J.D.

Melissa Hogan, J.D. is the President of Saving Case & Friends and is also a lawyer, author, and speaker on rare disease advocacy and strategies.

After her son Case was diagnosed with Hunter Syndrome (Mucopolysaccharidosis II) in 2009, she began writing a blog at that is now read in over 100 countries, and speaking on topics such as advocacy, clinical trials, and social media in rare disease. Melissa is considered one of the foremost advocates on Hunter Syndrome in the world.

She also serves as a Patient Representative for the Food and Drug Administration, an External Advisory Board member for the Mayo Clinic Center for Social Media, and coordinator of the Hunter Syndrome Research Coalition. In addition, she serves on boards for several rare disease organizations and writes for Rare Disease Report, The Huffington Post, and The Mighty.

Melissa holds a J.D., magna cum laude, with an emphasis in health law from the University of Pittsburgh School of Law, and a B.A., summa cum laude, in Communications and Political Science from Georgetown College. Prior to her son’s life-changing diagnosis, her law career included serving as a clerk on the U.S. Court of Appeals for the Sixth Circuit, a corporate and securities attorney, a professor of legal writing and health care regulatory law, and a management consultant to law firms on global strategy.

She enjoys writing music (check out the video for her song “Alive” which was also part of the Project Alive fundraising campaign) and playing guitar, and is also the author of the e-book Calmer: Medical Events with Cognitively Impaired Children (2012) which shares strategies for preventing medical trauma in children with chronic medical conditions.

Melissa is married to Chris Hogan, a prominent speaker on leadership and finance, and lives outside Nashville, Tennessee. The couple has three sons and enjoys attending their basketball games and track meets.