"Alive" Song About Hunter Syndrome is a Finalist in Global Competition – Needs Your Vote

Posted Monday March 28, 2016 by Melissa

Vote for Alive at bit.ly/votealive


STOP. Before you do anything else:

1.     Go to bit.ly/votealive and vote for “Alive” as a People’s Voice winner (first song on the page)


If you’ve voted, you’ll see:





2.     Share this post on Facebook, Twitter, etc. with the buttons above, ask your friends to vote every day

3.     Go back to  bit.ly/votealive and vote every 24 hours until April 15th!


It’s hard to fully share with others what the life of facing Hunter Syndrome is like – from diagnosis, to grief, to fighting to save your child.

I sat down one evening, after the kids were asleep, with some song lyrics that I had begun about this passionate and painful life we lead. Within 30 minutes, God poured the rest of the lyrics out of me. And through a good friend, I was able to connect with a compassionate and very talented songwriter (with multiple number one hits) here in Nashville to collaborate to make the song what it is today. You’ll recognize actual events from my life and the lives of many other families.

Spreading awareness of Hunter Syndrome has always been a passion of mine, ever since Case was diagnosed because of an awareness campaign (my mom saw an episode of the show Mystery Diagnosis about Hunter Syndrome). And so it was a natural step to share this song in a way that it’s message and that of ProjectAlive.org could possibly be spread farther and wider.

After hearing that the song was a semifinalist several weeks ago, it was amazing to be notified last week that the song is now a finalist in the ISC International Songwriting Competition! From over 18,000 total entries, “Alive” is now among 18 finalists in the country category and will be judged by artists you hear on the radio like Kesha, Eric Paslay, Sara Evans and Moby, as well as music industry publishers and A/R executives. In addition, voting from YOU and all of your friends can propel it to a People’s Voice award.

And for our Hunter Syndrome community and more, there’s this video (if you don’t see it below, go to bit.ly/singalive) and full lyrics below:

Words & Music by Melissa Hogan & Mark Irwin

She said I bet he’ll play football
He looks so big and strong
Momma turned away to hide her tears
A man once gave me a fire hat
Said I bet he’ll grow up into that
Momma just pretended not to hear

No I don’t wanna be a fireman or a football star
That ain’t close to what my wishes are

I want to be alive
That’s my only dream
But for some of us it’s harder than it seems
I want to live my life
Grow into a man
I want to watch my mom grow old and hold her hand
I want to be alive

They said there was no cure in sight
No chance for a normal life
Take him home and love him ’till he’s gone
But momma never was the same
A dragon fighter she became
And everyday she’s singing me this song

I want you here alive
That’s my greatest dream
But they’re saying that you won’t see seventeen
I want to save you son
And others just like you
Slay the dragon that has ripped my heart in two
I want you here alive

So she gave it all she had for years
No shame no pride but many tears
And after all the trials were said and done

I’m more than just alive
I’m living every day
As if this could soon be taken all away
I love with all my soul
Forgive without a thought
And hold tight to all my family all along

I want to be alive
As simple as that seems
I want to live long after seventeen
Content with one more day
Until I’m old and gray
Till heaven leads me to my final dream
I want to be alive

(c) 2015 Melissa Hogan & Mark Irwin

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