One of my favorite ways to engage on all things rare disease is on Twitter. It’s as easy as typing in a hashtag (#) of your interest – for me #raredisease. My Twitter profile looks something like this:
So this morning, when I saw what appeared to be an interesting New York Times op-ed about rare disease, I rushed to read it.
So after engaging on Twitter, I gathered a Storify that summarizes the discussion and shows why these types of articles are dangerous to our cause of finding and funding cures for rare disease. I would love your thoughts in the comments below or on the storify itself.