I recently wrote an article that was published today in the Positive Exposure newsletter about my experience visiting the Hunter in Focus exhibit this year in NYC.
Go Ahead and Stare
By Melissa Hogan
Normally, none of us likes to be stared at. Do we look bad? Is there something on our face? Do we look strange? Staring makes us feel… different. And for some reason, we’ve learned that being different is bad.
But being different can be good…. Read more.
Many of us have had to endure various stares and comments about our children’s looks or behavior. I’ve even written a post about some strategies for handing these situations (see Handling the Stares and Comments). So with those experiences, it’s incredibly wonderful when something like the Positive Exposure exhibit turns staring at our kids (or their pictures) into a good thing. Although in-person stares do provide an opportunity to create awareness by starting a conversation about MPS with the staring party, sometimes it can be incredibly awkward and difficult for us as parents. Something like this exhibit allows people to learn about our kids and their condition even if it’s only the staring that first draws them in.
I am incredibly thankful for organizations like Positive Exposure who work to bring understanding of difference and raise awareness about genetic conditions like MPS. Please read more about their amazing mission and work at PositiveExposure.org.