Children with MPS or other special needs often have a need to chew. They might start with their hands, their shirt, or other handy item, but eventually, parents realize that it is probably safer, cleaner, and more purposeful for their child to have specific items for chewing. I’ve recently seen other parents with great thoughts on chewies and thought that with their permission, I’d collect them here. Hopefully this will be helpful to other families looking for chewy information. Thank you to all that contributed! If anyone has additional resources or thoughts, please comment below!
From Zezee, mom to Reed, MPS IIIA: Here are a few chewies I have purchased from Therapy Shoppe . I have placed them in order from hardest to softest to help other parents when trying to decide which ones to try first. It seems often the younger children prefer the softer ones, but over time they become expert chewers and require the harder ones or else they will be destroyed too quickly and biting off pieces would become a danger as well.
Stacey, mom to Lucas, MPS IIIB: We used chewelry and attached the chewy on the end. Lucas would bite the metal on lanyards and keyrings. He would also chew the lanyard so that made it hard to clean. He would switch back and forth from chewing the chewelry and chewy so both provided some sort of sensory satisfaction.
Alicia, mom to Ciara, Hunter, & Tommy, MPS IIIA: I always had a pacifier or chew toy around Hunter’s neck but I was terrified of him getting it caught on something and choking him so I always put the chewy on a breakaway lanyard so if it did get caught he wouldn’t get strangled. Cassandra, mom to Austin, MPS IIIB:
I bought “bungee key chains” online at Ebay (4 of them with shipping were $8) then the chewy tubes I buy at sensoryuniversity on Ebay (I can’t think of the price right now). The toys that I atttach at the bottom I buy at Walmart they are called Obi balls (about $5) and they have footballs, bigger balls, soccer looking balls with rattles in them, weight lift looking ones. I like them because they are very squishy, don’t hurt when they swing them and hit you (or themselves) and when Austin trips and his hand is holding it, it won’t break his fingers when he falls on it. Those break away lanyards were just at Walmart for $.88 for back to school! I bought a few but they are a little too long for Austin. But I’m going to shorten it up and try it 🙂
Leslie, mom to Izzy, MPS IIIB: We used chewelry around Izzy’s neck to hold the pacifier. It is rubbery and springy like the old telephone cords.
Robin, mom to Logan, MPS II: We’re currently hooking chewies (Ark’s grabber XXTs or Superchews) to a chewelry necklace for Logan. I was afraid to use anything around his neck when he was more mobile because I was afraid he would strangle himself. Now he has someone with him any time he is walking around, so it works well.
Angela, mom to Emily, MPS IIIA: Choking risk is why we switched to the binkie holders. She can have the lanyard during the day but I’m really liking the binkie keepers.
Stephanee, mom to Rachel, MPS IIIB: We use chewable jewels. Rachel doesn’t like it around her neck, so we do knot on her shirt sleeve. I will say the cord it comes on breaks a lot. I was trying to think of something new when I saw a thin shoelace. I’ve used it for weeks now with no breakage or fraying.
Other sources we’ve found: