I am so excited about next week’s release of my e-book Calmer: Medical Events with Cognitively Impaired Children. This e-book started out as a response to an e-mail, then became too long for that. Morphed into a blog post, then became too long for that. A lot of research, trial and error with my sweet child, and discussions with therapists, nurses and doctors resulted in this book. I hope that it will be helpful to other families with cognitively impaired children, including our MPS families. I don’t profess to be a psychology or medical expert, but I’m a student of Case, his condition, and his unique needs and I’ve worked quite hard on this for the last year, so I just hope it can help anyone!
You might recognize sweet Case on the cover. This event might also look familiar to many families as it is during an EKG at a cardiology visit. This is just one type of test that can be incredibly difficult with a special needs child. So many stickers, leaving them on, wires everywhere….
Case is my inspiration in all of this work. If it weren’t for him, I would not have any reason to know any of this information. And other MPS families continue to inspire me day after day.
So when you see that it’s released, I would be blessed if you’d check it out and consider picking up a copy. I hope that these strategies will be as helpful to you as they continue to be for me.