Special needs means … special gifts

Posted Friday February 03, 2012 by Melissa

baby Case

I loved being pregnant. Even though Case was a surprise, I just couldn’t get over the kicking, rolling, and hiccupping that delighted me each day.

baby CaseWhen he was born, he had those round cheeks, full lips. I wanted to breathe him in every time I saw him. I could have snuggled those cheeks all day long. It was a little tough to snuggle through a ventilator and then an oxygen cannula, but you make it happen.

He changed my life from the moment he entered it.

And when he was diagnosed with MPS, he changed it even more.

More doctors’ appointments, more tests, more therapy, more school meetings, more medical equipment, more frightening ER visits….

But also….

More sweetness, more delight in each moment, more joy at every accomplishment, more appreciation for life and those who choose to enjoy it with me, more life….

Is it fair to say that the child who brought the potential for death also brought the release of life?

There are now some more simple tests for chromosomal abnormalities like Down Syndrome (read more here) and people will be able to detect conditions in the privacy of their own home, deciding whether or not to keep this child. It is fair to say that this testing potential will increase over time and could someday include the conditions that many of our children suffer from.

baby Case-2Do we really want our society devoid of those with disabilities? Devoid of special children with MPS, with Down syndrome, with other special gifts? When most people agree about how much they enrich the lives of their families and everyone around them, do we really want them just not to exist?

Don’t they take delight in their accomplishments, albeit they may often be tiny from the world’s perspective? Don’t they cherish a cheek’s brush and a mother’s soft kiss? Much more than they would cherish not living at all?

A child can change your world. He can change the world around him. Change almost everyone he comes in contact with.

Special things are things that we cherish, that we don’t want to lose, that we show the world how amazing they are.

Maybe special needs are just that … special.

2 Responses to “Special needs means … special gifts”

  1. Is it fair to say that the child who brought the potential for death also brought the release of life?

    Yes, my experience, as a parent of a child with Down syndrome, would be that this is entirely true. The great release through adversity.

    At http://www.savingdowns.com we advocate to save Down syndrome and others.

  2. Iknow my highfunctioning autistic nephew has taught me so much and while I feel guilty about it all the time I will admit I am closer to him (but still very close to my other neices and nephews to) in a way I could never be with my others nephews and nieces because Zander perceveres despite really tough home conditions with a step dad that basically hates him, 2 different classes every day (4k and early childhood) on top of ABA classes at home and trying to adjust to a baby sister after he has been the onl child for 4 1/2 yrs and is still the only child at his Dad’s house. Zander’s ebullient spirit and quirky funny attitude, his constant reminder to get up and go and his sweet care free nature of what I deal with (it doesnt matter to him I am just his Aunt that he loves and wants to be with as much as possibl). I dont know I guess what im saying is as an Aunt i think to you can in a maybe different way understand how special needs parents feel – I know this kid has been a light in some of my darker, harder days! 🙂