The Cure Theorem: a rare disease proposition

Posted Monday January 30, 2012 by Melissa

Cure Theorum

This post is part of a blog hop to promote World Rare Disease Day on February 29, 2012. Please visit the posts of the other participants listed at the end of this post, as well as the blog of the R.A.R.E. Project, the sponsor of the blog hop!
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Why do organizations like R.A.R.E. Project and Global Genes exist? Why is there a Rare Disease Day? Why are we having a blog hop for rare diseases collectively? Don’t we have enough organizations and memorials for our separate diseases that we don’t just need one more?

No.

We need each other.

We need the entire rare disease community.

We need each other to find cures.   Together.

What does it take to find a cure for a rare disease?

Cure Theorum

Our Special Children plus Awareness of the conditions, multiplied by Pushy Parents and Caring Doctors, although divided by Funds….. blessedly multiplied by Miracles to find … a CURE.

Special children … yes, they are.

Pushy Parents … why yes, we are.

Caring Doctors … yes, they are.

Help us increase the Awareness and the Funds to bring us closer to our CURES.

 

1 Million for RareHow can you do that?

  1. Help unite 1 Million for RARE on the Global Genes Project Facebook page so that we can increase awareness to the rare disease community.
  2. Wear That You Care (using jeans to call attention to genes that can cause rare disease) on World Rare Disease Day and encourage others to do so too. Include your schools, sport teams, places of worship, friends, family and coworkers! Share your photos on Facebook and tag Global Genes Project.
  3. Donate a bracelet to the 7000 Bracelets for Hope campaign and bring hope to a child/family living with rare.
  4. Are you living with rare? Sign up to receive one of the 7000 Bracelets via the Global Genes website and also join the R.A.R.E. network.
  5. Participate in one of the many other events for World Rare Disease Day on February 29, 2012, whether in the USA or anywhere in the world!

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8 Responses to “The Cure Theorem: a rare disease proposition”

  1. I couldn’t agree more. Collaboration is essential to finding cures and causes sooner rather than later.

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    • I agree Theresa. The research and theories for many diseases can be translated to others. Also, it is so helpful to make people aware of the prevalence of rare disease overall.

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  2. I absolutely love your formula!

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  3. The Cure Theorem…I like it!!

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    • Thank you Vicki. There are so many factors that go into finding cures for rare diseases, that I hope I was able to represent some of them.

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  4. This is very attention-grabbing, You are a very professional blogger. I have joined your feed and look ahead to in the hunt for more of your wonderful post. Additionally, I have shared your web site in my social networks

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  5. Thank you for supporting Rare Disease Day! My son Gage passed away from a rare genetic disease called early-onset LAL deficiency (also known as Wolman disease) in 2009. Rare Disease Day means so much to the millions of people and families affected by the approximately 7,000 rare diseases. Thanks again! Mary http://www.lalsolace.org

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