Advocacy has been central to the mission of the founders of Saving Case & Friends long before a formal organization existed. Individuals and family members affected by Hunter Syndrome are often forced into an advocate role in education, healthcare, insurance, research, and legislation.

We believe not only in empowering our community through advocacy education and training, but also in advocacy mentoring. To learn more about how to be an effective advocate, review our advocacy resources below and/or contact us to connect with an advocacy mentor in your area.


Advocacy Resources

Coming soon